Our Juvenile Arthritis Campaign

Juvenile Arthritis Appeal

Why have we launched our Juvenile Arthritis Campaign?

In November 2014, our organisation launched a Juvenile Arthritis Campaign to raise awareness and funding for paediatric rheumatology in NSW.

With 6,000 children living with arthritis in NSW and just 2 full-time paediatric rheumatologists, NSW has fallen well behind NSW Health standards and national and international benchmarks. The level of care for juvenile arthritis means that NSW is the worst performing state in Australia.

Our supporters have been involved in our campaign every step of the way as we put this crucial health issue in the spotlight and the response so far has been amazing.

What do we need?

NSW needs a minimum of 6-8 paediatric rheumatologists to provide care for children with juvenile arthritis. With your help, we can focus the spotlight on the fact that there are just 2 full-time paediatric rheumatologists in NSW and that there is an urgent need for more.

What is our expected outcome?

With our Juvenile Arthritis Campaign and the help of our supporters, we can raise enough attention to this issue and lobby for increased funding for paediatric rheumatology. An increase in funding will allow NSW to have 6-8 full-time paediatric rheumatologists looking after the children of NSW struggling with their arthritis.

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How can you get involved?

There are a number of ways people can join our Juvenile Arthritis Campaign and spread the message of our campaign.

Share the Message on Social Media

We have posted about our Juvenile Arthritis Campaign on our Facebook and Twitter pages. You can share, post and like and help raise awareness among your followers.

Sign Our Online Petition

We have set up an online petition. Click here to add your name to our growing campaign and circulate the link to your family, friends and colleagues as we continue to raise awareness.

Write Letters and Emails to Your Local MP

We have posted over 2,200 letters to our supporters encouraging people to write to their local MP and tell them that something needs to be done about paediatric rheumatology in NSW. Over 2,800 emails have been sent to our supporters as well encouraging them to email or write to their local MP as well.

If you would like to get involved in our Juvenile Arthritis Campaign and write a letter to your local MP, contact us on 02 9857 3300 or info@arthritisnsw.org.au and we can help you join our growing effort to increase the number of paediatric rheumatologists in NSW.

Donate Generously to our Juvenile Arthritis Campaign

We sent out letters to our members, subscribers and supporters throughout October and November telling them of the lack of paediatric rheumatologists in NSW and asking for the communities support. Click here if you would like to donate to our cause and support the children of NSW living with arthritis.

Tell Your Local Media About our Campaign

Media outlets have been contacted about this issue as we seek to use the power of the media to continue to raise awareness in NSW.

Our Juvenile Arthritis Campaign Timeline

September 2014: We began collecting case studies and interviews for our Juvenile Arthritis Campaign, including interviewing Dr Davinder Singh-Grewal, one of the 2 full-time paediatric rheumatologists about the issues faced in NSW.
14 November 2014: We posted our Juvenile Arthritis Campaign to thousands of members, supporters and donors all across NSW spreading the message that something needs to be done for paediatric rheumatology in NSW.
19 November 2014: Jannine Jackson, CEO of Arthritis & Osteoporosis NSW spoke at our 2014 Annual General Meeting (AGM) on about this issue being one that needs immediate action and the consequences of a lack of paediatric rheumatologists in NSW.
19 November 2014: We posted about our campaign to our Facebook and Twitter followers alerting them to this issue and asking them to share it with their social media pages.
24 November 2014: We sent out 2,200 letters by mail to our members and supporters and 2,800 members and supporters by email, drawing their attention to the issue of paediatric rheumatology in NSW.
25 November 2014: We launched our online petition asking people to join our campaign.
26 November 2014: We passed 100 signatures on our online petition.
27 November 2014: We passed 300 signatures on our online petition.
27 November 2014: The Daily Examiner published an article highlighting our Juvenile Arthritis Campaign and telling the story of Shanita, a tenpin bowling champion with juvenile arthritis. Click here to read the story.
1 December 2014: The Daily Telegraph published an article highlighting our Juvenile Arthritis Campaign and the need for action. Click here to read the story.
2 December 2014: We passed 400 signatures on our online petition.
5 December 2014: The Armidale Express published an article highlighting our Juvenile Arthritis Campaign. Click here to read the story.
10 December 2014: We passed 500 signatures on our online petition. Click here to add your voice to our petition.
12 December 2014: We passed 600 signatures on our online petition.
12 December 2014: Femail magazine published an interview with our CEO Jannine Jackson discussing the impact of juvenile arthritis and our our campaign. Click here to read more.
17 December 2014: Our CEO Jannine Jackson met with the Minister for Health’s office and the Chief Executive of the Children’s Hospital Network to discuss the state of paediatric rheumatology in NSW and about finding a way forward.
19 December 2014: We passed 800 signatures on our online petition for more paediatric rheumatologists in NSW.